We’re More Than Epilepsy Awareness and Support
Epilepsy Wellness Advocates was founded by Charles Shor, who has lived with epilepsy for nearly 40 years. His experience includes everything from seizures to traditional treatments, to side effects and into surgeries.
And a lifetime search for answers beyond traditional treatments.
Motivated by a lack of comprehensive research, Charlie has committed his time and significant resources to advance epilepsy wellness in new ways. His focus has always been on improving quality of life—through non-pharmacological approaches and solutions rooted in lived experience.
Charlie’s early belief in the connection between stress, diet, sleep, and seizure activity is now being explored in formal research. EWA was built to help fund and grow these initiatives by working with like-minded partners—those who share the vision of improving epilepsy wellness and management.
Partner with Us to Help People Manage Epilepsy
When Charlie began this journey, he never imagined that his pursuit of answers would one day connect him with organizations like yours. Today, EWA exists to extend and accelerate your programs through financial resources that help improve life for people living with epilepsy.
We’re looking for mission-aligned partners—whether you’re developing research, building community-based programs, or exploring alternative wellness solutions.
Together, we can help individuals and families by making wellness resources more accessible, effective, and informed by real-world challenges.
Let’s Build a Network Focused on Wellness
At EWA, we believe real change occurs through collaboration. We work with partners to design and distribute research-based tools, programs, and resources that support people living with epilepsy in their day-to-day lives.
Whether it’s research into lifestyle changes or a community-centered wellness program, we’re committed to investing in ideas that make an everyday impact in epilepsy management.
We’re already resourced to drive long-term change. Now we’re looking for more organizations to fund and join us in building a network of practical, wellness-centered support.
Epilepsy in the United States: a call for increased epilepsy awareness
Common Challenges in Epilepsy Management
While our focus is on partnering on research, we never lose sight of why we’re here: to help address the challenges people living with epilepsy face every day. The more we understand these barriers, the better equipped we are to build effective wellness strategies together.
Mental health struggles
Emotional distress from stigma, isolation, and uncertainty is a major wellness concern for many living with epilepsy.
Unpredictable seizures
The inability to predict when or where seizures will occur often limits participation in daily life, and creates stress for families and caregivers
Medication side effects
While sometimes necessary, medications can carry significant side effects that disrupt cognitive function, energy levels, and emotional balance.
Limited motor skills
Restrictions on driving or physical independence affect social connection and self-sufficiency.
Restrictions on employment
Workplace discrimination, absenteeism, and safety concerns often create roadblocks to consistent employment.
Increased financial burden
The cost of medications, devices, and lifestyle accommodations can be significant, particularly for individuals without adequate insurance or resources.